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Eurordis |
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European organization for rare diseases. Provides information about rare diseases, patient organizations, orphan drugs, EU policy, news and a forum.
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http://www.eurordis.org/
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Genetic and Rare Diseases Information Center |
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Details about GARD, a genetics FAQ, specific genetic disorders, a glossary and clinical research info.
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http://www.genome.gov/10000409
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National Organization for Rare Disorders, Inc. |
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NORD offers a rare disease and organization database. Also news, research, program and services details.
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http://www.rarediseases.org/
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Office of Rare Diseases - National Institute of He |
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Provides information about ORD sponsored biomedical research, scientific conferences, rare and genetic diseases. Site is in English and Spanish.
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http://rarediseases.info.nih.gov/
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University of Kansas Medical Center |
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Find an alphabetical listing of genetic and rare disorders.
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http://www.kumc.edu/gec/support/
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